Local man runs in aid of local girl Lexi


August 29, 2020

A local man has pledged his support to raise funds for some memorable family moments.

Josh Brandwood is a former local councillor and tells us more:

“Just a few weeks ago, [I read about] a heart-breaking and intimate story about a local little 2 year old girl called Lexi Tindale.”

 

“From an early age, doctors diagnosed Lexi with Krabbe Disease, a rare incurable neurological condition that affects the nervous system. The rate of progression depends on what form of the disease the individual has; however, as Krabbe advances it encompasses all aspects of bodily function and is a fatal disorder. “

 

“There are currently thought to be just eight children in the U.K with the incurable disease - and the average life expectancy is only two years old, although some children have lived up to eight. Sadly, there is no cure.”

 

“The story really resonated with me having lost a child during pregnancy. I cannot begin to imagine the sheer anguish and heartbreak Lexi's family must feel each day knowing the inevitable. No parent wishes to outlive their children.”

 

“After speaking with Lexi's mum, I learned more about her wonderful two year old and found that she loves sensory rooms and animals.”

 

“This Saturday 29th August at 1pm I will be running 5K on Morecambe Promenade starting at the clock tower.”

 

If people would like to donate they can visit:

 

https://justgiving.com/crowdfunding/lexiwish